In the United States, adults with intellectual and/or developmental disabilities are particularly at risk for losing their legal right to make decisions about their lives, including where to live, what to do during the day, and what kinds of health care they will receive. Decision making rights for adults with disabilities are often removed and awarded to a substituted decision maker as occurs under guardianship. HSRI’s evaluations shared the story of a collaborative, intentional SDM pilot and distilled the experiences of participants, lessons learned and implementation challenges.
Authors: Elizabeth Pell, MSW, LICSW, and Virginia Mulkern, PhD
Organisation: Center for Public Representation